LOTS AND LOTS AND LOTS OF PRAYERS NEEDED

OK PRAYER WARRIORS...


no not for us .. everything is still the same with us Appt Monday

I have a friend Ashley O who has been battleing some serious cancers. First it was Inflammatory breast cancer, Then brain, and now one of the recent tests show some spots on her spine. She is a wonderful mother who needs ALL of our prayers right now
please..

Also Tony Merk the 6Y boy with brain cancer still needs prayers he has been battling a roller coaster of seizures lately

thanks everyone and GOD BLESS!!!!!!!!!!!!!!!

Happy Easter, not thanksgiving but VERY thankful :)

Slow and steady is the course that gets you there...and hopefully it maybe the course we are on.

This weeks appt was about the same. He is still holding steady
His head grew a little now measuring at 25 wks (remember it was just under 23), His femur measured 28wks ..which is almost right on. However the Cele (brain sac) grew just a little too its now 4.75 (was 4.5)
The fluid level was about the same at 2.2

We really believe in the power of prayer so everyone please keep praying.
We are so thankful for everyone.


We had a nice relaxing weekend and Easter.

I am still hanging in there. resting as much as possible, and drinking as much water as physically possible.

And this weeks ultrasound ..

Sorry to keep some of you waiting or worried it was really just the same
He is stable good heart beat no extra fluid build up in the body.
And the amniotic fluid level was 2.3 ..so it went up just slightly.

No growth measurements she only does those every 2wks.

Chris and I did get a copy of our MRI report and images to go over again (since that appt seems like a blur) I am having a hard time finding the picture which displayed the kidney abnormality I "may" post a picture here that shows the cele sac i know some of you are interested in that.

I decided to try and go back to work on Tues I went for about 6-7hrs, then today for the same. I think it was a bit too much as my body is responding by being very sore and weak. So I will probably try bed rest again.

Thats about it for now!!

thanks again for all your support and prayers Dinners, house cleaning, helping with Kayla.. i have no clue how I will ever be able to Thank or repay everyone for all they have done for us and the journey is still very very long..

no news is good news....

I am happy to report there is little to no change...which is good considering
The fluid is still dangerously low at 1.75
his heartbeat is still strong at 173
there is no fluid build up in his brain or else where. (hydrops the u/s tech calls it)

Today was a growth scan and he did grow a little. Head now at 24wks3days. The cele sac however has grown a little also :( its now 4cm across (was 3cm)
He gained 5oz which isnt a whole lot but its a GAIN :) He weighs 1lbs 8oz

We've decided to keep me on strict bed rest again til next weeks appt to see what happens.


On a side note I think overall we had a pretty up beat weekend around here. Friday afternoon my cousin took Kayla to see HOP (thanks again patty) Friday night we lounged around the house catching up on some of our Tivo together.

Saturday the girls forced me to keep my day out plans with them of outlet shopping and dinner at Red Robin (Yummmm) They got me a wheelchair and pushed me around for the 2.5hrs we shopped. Even tho I didnt do much i was EXHAUSTED by the end of dinner

Sunday we went to church for the first time in forever it was NICE. Kayla enjoyed it a lot it was her first time going to children's church. There was an Easter Egg Hunt at our clubhouse here in the neighborhood we happened upon on the way home from church. Kayla enjoyed that too. Then Chris spent about 5hrs cutting grass and doing yard work while Kayla got to play outside all day. I of course was inside in my recliner. It was nice to do some "normal" things for a change even tho Korbin never left my mind.

In the car after my appt today I said to my mom maybe my little man is going to prove the Drs all wrong. She said I hope so I really hope so.
Only God knows and I have faith whatever he has choosen is the right path!

And the hits just keep on coming....

Hello all,

This is Chris.

Thursday's follow-up did not go very well. In three days the fluid level dropped in half again down to 1.2. Our doctor believes it could be because the placenta has an issue or his kidneys are not functioning properly or both. This has become quite serious because without amniotic fluid, Korbin's lungs cannot develop properly which is a for sure death sentence, as if the little man didn't have enough problems. At this point the doctors have no hope and have told us that this is looking like the beginning of an abrupt end. In "normal" pregnacies when the fluid gets this low, the mother is admitted into the hospital or put on strict bed rest and is told to stay completely hydrated. Our doctor has not given us that direction. She said that "In my honest medical opinion, bed rest and hydration absolutely can't hurt, but with the multiple problems he is having, its too far gone to help." She has told us that she expects him to not have a heartbeat in the near future during one of her weekly ultrasounds and that she knows that we have been hoping for a miracle, but if one was going to happen, we should have started to see it by now. All in all, it's looking grim.

Please rest assured that we still are not giving up hope. Although the doctor said it is not going to help, we have decided to keep Tonya from doing anything, so she is basically on self imposed bed rest right now, sitting in her chair (complaining about being bored) and drinking at least a gallon of water a day. We feel that in 6 months, 1 year, or 5 years from now, we do NOT want to be sitting around thinking "could we have done more". So no matter what the doctors say, we are going to do everything we can to give Korbin a fighting chance, no matter how small of one. As long as Tonya doesn't get her hand on a bell or whistle, i think will be able to keep my sanity until then. ;)

We didn't even want to think of the worst case, but we have decided to contact the Shinning Star program (Hospice for infants and their parents) and have asked our doctor about what happens if Korbin passes before he is born. Tonya will have to be induced, have a still birth, and stay overnight in the hospital, like she would a regular delivery. We have requested to not be on the same floor as the other mothers and babies, because emotionally it will be entirely to difficult for Tonya to have to listen to other families and other babies crying during her stay. Emotionally, having to think about this is already taking a toll on her, and i am trying to do everything i can to stay strong for her. I can tell you that all of your thoughts, prayers, emails, phone calls, dinners, text messages, etc... really seem to brighten her up, so thank you all of that!!!!!

I am also overwhelmed and extremely touched by all the support. I have received so many emails, texts and phone calls myself and i honestly feel blessed. I feel horrible that i haven't responded to them all directly and i would like to apologize to all of you that i haven't gotten back to. I promise you that i have received your messages and i hold them dear to my heart, so please don't be offended if i haven't responded.

Thanks again for everything. We have the best friends and family IN THE WORLD!!!!!!!!!!

Love,
Chris, Tonya, Kayla, and Korbin

yesterday we took a few pictures here are some we'd like to share

more details on fluid ..

so as i said yesterday my level is now a 2.5. It was 5 last week. It was explained to be 5-8 is "normal" and safe...so 2.5 is potentially lethal :(

This is what i have read about amniotic fluid for those of you who dont understand
here is a good read for info-
http://www.americanpregnancy.org/pregnancycomplications/lowamnioticfluidoligohydramnios.htm




I am trying to be on strict bed rest for the next few days with lots of fluids

I go back on Thur for a re check of fluids so again its the game of waiting
still not giving up hope and faith

Fluid levels are now HALF

Hey everyone still at the Drs but I wanted to post a quick post for prayers ..
My overall fluid levels went from a 5 to 2.5 please pray for us
This is very very very bad :(

So Kayla finally knows..

SO we finally told Kayla...
well actually I did. Chris had already left for work for the day.
Early Wednesday morning Kayla climbed in bed to snuggle (she does this sometimes)
and as we were laying there she kept asking quesetions (very concerned) that we hadnt bought Korbin lots of clothes or diapers. Because he was gonna need lots of those. And why didnt start getting his room already,werent we exited.
Soo it just seemed like the right time to finally tell her.

I just told her he wasnt very "healthy" in mommy's belly. That he had a hole in his head and the Doctors where concerned he was going to be able to live. I told her mommy and daddy were going to do everything in their power to help him but that sometimes God needs us anyway ..even little babies.

She was upset at first but she really hasnt spoken much about it since then or asked many questions.
Friday as i was brushing her hair for school she was staring in the mirror and I asked her what was on her little mind to which she replied "just thinking about the baby and him not living" :(

She has prayed for him..and the people over there in that China place where they took all their food away b/c its poisoned (japan lol) who knows where she got that from.

She seems to be handling it well, but shes a fighting Soldano :)